Caregiving may be one of the most important roles you will ever take on in your life. It is not an easy role, and most of us are never prepared for it.

Being a family caregiver for a spouse, parent, or loved one takes a lot of time, effort and work. It challenges you both intellectually and emotionally. You may have become a caregiver suddenly and without warning, or perhaps your role evolved slowly over time. Either way, you deserve reliable resources and helpful tips to take care of your care loved one and yourself.

There are many resources available to make sure that both you and your care recipient are living the best lives possible. Through these caregiver links, you will find a range of information to make your caregiving experience more successful.

Print and Media Resources

Caring for a Person with Alzheimer's Disease image

For family members or others with Alzheimer’s disease (AD) at home

This guide is for people who care for family members or others with Alzheimer’s disease at home. Alzheimer’s is an illness that changes the brain. It causes people to lose the ability to remember, think, and use good judgment and to have trouble taking care of themselves. Over time, as the disease gets worse, they will need more help. The information in this guide comes from other caregivers and from medical research, such as that funded by the National Institute on Aging. The NIA is part of the National Institutes of Health, the nation’s medical research agency. The NIA leads the federal effort to find the cause of and treatment for Alzheimer’s disease.


pathways of hope cover“Pathways of Hope: Living Well with Cognitive Changes”

This book and DVD series shares the first hand stories of a dozen persons who noticed cognitive changes well before the age of 65 years. The insights and resources included in this 72-page book is a must read for anyone working with people, since one in three families have a loved one with Alzheimer’s. A scientist wrote that this “short book with its inviting photographs, inspiring stories and beautiful layout embodies the efforts of a group of individuals involved in an important revolutionary movement.” It shares important information and resources about early symptoms, exercise and physical capacity, nutrition, avoiding toxins, integrative medicine, and advocacy. For this easy to read, easy to give resource, order online at the University of Wisconsin Press. This book is also available through most book stores and online book dealers.

Click here to read an excerpt of the book and here to watch the trailer.

consider the conversation 1 coverTwo documentaries on a taboo subject

The “Consider the Conversation” series is remarkable, with two thought-provoking films that look at many of the issues that we will all face at the end-of-life. Produced by care industry veteran Michael Bernhagen and filmmaker Terry Kaldhusdal, they open the floodgates of thought and conversation on this most difficult and often taboo subject. Watch the trailer here.


Community Resources

Alzheimer’s and Dementia Alliance: The expert staff at ADAW understand that every person touched by Alzheimer’s or other dementia will need support to help them navigate the course of the disease. They can guide you through the complex maze of issues that can arise by offering personal consultations, education, access to resources and advocacy.

East Madison/Monona Coalition of the Aging: A nonprofit agency providing social services to help area seniors maintain their independence and life satisfaction. EMMCA provide programs and services for senior adults, assists senior adults and their families in accessing services, networks with agencies and organizations interested in senior issues and concerns.

Senior Centers

At senior centers, individuals can interact with their peers, be part of decision-making processes, and fulfill their interests. This allows adults to continue to experience a sense of achievement and to be productive in their community, which is important throughout anyone’s life.

Colonial Club Senior Activity Center · 301 Blankenheim Ln, Sun Prairie · (608) 837-4611

Fitchburg Senior Center · 5510 E Lacy Rd, Fitchburg · (608) 270-4290

Madison Senior Center · 330 W Mifflin St, Madison · (608) 266-6581

McFarland Senior Center · 5915 Milwaukee St, McFarland · (608) 838-7117

Middleton Senior Center · 7448 Hubbard Ave, Middleton · (608) 831-2373

Monona Senior Center · 1011 Nichols Rd, Monona · (608) 222-3415

Oregon Area Senior Center · 219 Park St, Oregon · (608) 835-5801

Stoughton Area Senior Center · 248 W Main St, Stoughton · (608) 873-8585

West Madison Senior Center · 602 Sawyer Ter, Madison · (608) 238-0196

West Madison Senior Coalition · 517 N Segoe Rd Ste 309, Madison · (608) 238-7368

Verona Senior Center · 108 Paoli St, Verona · (608) 845-7471

Waunakee Senior Center · 333 S Madison St, Waunakee · (608) 849-8385

Geriatric Clinics

UW Health Geriatric Clinics · 2880 Univ Ave, Madison · (608) 263-7740

Madison VA Geriatrics · 2500 Overlook Terrace, Madison · (608) 280-7011

Area Agency on Aging · 2865 N Sherman Ave, Madison · (608) 261-9930

Jewish Social Services · 6434 Enterprise Ln, Madison · (608) 278-1808 ext 228

Industry Groups

American Advisors Group

Steve Kalscheur
Ph: (608) 235-2800
Madison, WI Branch Office
5610 Medical Circle Suite 4
Madison, WI 53719

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