Being a family caregiver for a spouse, parent, or loved one takes a lot of time, effort and work. It challenges you both intellectually and emotionally. Through these caregiver links, you will find a range of information to make your caregiving experience more successful.

Caring for a Person with Alzheimer’s Disease: Your Easy-to-Use Guide from the National Institute of Aging

This guide is for people who care for family members or others with Alzheimer’s disease at home. Alzheimer’s is an illness that changes the brain. It causes people to lose the ability to remember, think, and use good judgment and to have trouble taking care of themselves.

Over time, as the disease gets worse, they will need more help.

The information in this guide comes from other caregivers and from medical research, such as that funded by the National Institute on Aging. The NIA is part of the National Institutes of Health, the nation’s medical research agency. The NIA leads the federal effort to find the cause of and treatment for Alzheimer’s disease.


Pathways of Hope: Living Well with Cognitive Changes

This book and DVD series shares the first hand stories of a dozen persons who noticed cognitive changes well before the age of 65 years. This 72-page book contains important information and resources about early symptoms, exercise and physical capacity, nutrition, toxins, integrative medicine, and advocacy.

To view this easy-to-read resource, order online at the University of Wisconsin Press. This book is also available through most book stores and online book dealers.

Click here to read an excerpt of the book and here to watch the trailer.


Two documentaries on a Taboo Subject

The “Consider the Conversation” series is remarkable, with two thought-provoking films that look at many of the issues that we will all face at the end-of-life.

Produced by care industry veteran Michael Bernhagen and filmmaker Terry Kaldhusdal, this piece offers ideas and strategies for this most difficult and often taboo subject

Watch the trailer here.


Community Resources

Alzheimer’s and Dementia Alliance: The expert staff at ADA understand that every person touched by Alzheimer’s or other dementia will need support to help them navigate the course of the disease. They can guide you through the complex maze of issues that can arise by offering personal consultations, education, access to resources and advocacy.

East Madison/Monona Coalition of the Aging: A nonprofit agency providing social services to help area seniors maintain their independence and life satisfaction. EMMCA provide programs and services for senior adults, assists senior adults and their families in accessing services, networks with agencies and organizations interested in senior issues and concerns.